Your Consent

Sponsor: The Social Sciences and Humanities Research Council

Principal Investigator: Dr. Tamara Daly, M.A., PhD, Professor, York University. PH: 416-736-2100 x 30522 EMAIL: dalyt@yorku.ca

Purpose of the Research: This research will advance knowledge about work and care conditions in long-term care (LTC) for those who perform paid work (staff, agency and other workers), family members and other care providers (such as volunteers, students and paid companions) who work in LTC homes.  It will seek insights into current conditions.

What You Will Be Asked to Do in the Research: You are being asked to complete a survey that includes closed- and open-ended questions about your work and its conditions and about you (demographic information). It will take approximately 30 minutes to complete this survey.

Risks and Discomforts: We do not foresee any significant risks or discomfort from your participation in this research. It is possible that you may experience minimal discomfort in discussing your perspective and experiences of work and working conditions in long-term care homes, however this is not expected to be greater than that encountered in your everyday life. 

Benefits of the Research and Benefits to You: This research is about ongoing shifts in the experiences of work and care conditions of paid staff, (including agency and other workers), family and care providers (e.g. volunteers, students and paid companions) who also work in LTC homes. We aim to inform research, policy and practice improvements in Canadian LTC homes. You are not expected to benefit directly from participation in this reserch. You may, however, gain satisfaction from helping to advance knowledge about long term care work that provides for improvements in this area.

Voluntary Participation: Your participation in the study is completely voluntary and you may choose to stop participating at any time.  Your decision to not participate will not impact ongoing relationships you may have with the researchers or study staff, your workplace colleagues or managers, or the nature of your relationship with York University either now, or in the future.

Withdrawal from the Study:  You can stop participating in the study at any time, for any reason. Your decision to stop participating, or to refuse to answer particular questions, will not affect your relationship with the researchers, York University, or any other group associated with this project. In the event you withdraw from the study, all associated data collected from you will be immediately destroyed wherever possible. Should you wish to withdraw after the study, you will have the option to also withdraw your data up until the analysis is complete.

Confidentiality: Confidentiality will be provided to the fullest extent possible by law. All information you supply during the research will be held in confidence and unless you specifically indicate your consent, your name will not appear in any report or publication of the research.   Data will be recorded and stored using a on-line form. On-line survey data will also be stored, encrypted and backed up on York University’s secure servers, on password protected research computers and entered into a secure database to facilitate analysis. No data linking individual’s names with their survey responses will be recorded.

At the end of the study, the anonymized survey data will be transferred to files stored on a password protected computing system. A password protected virtual private network such as that provided by the Canada-based firm Igloo or its affiliates and the survey data firm Redcap will be used to store data, related Excel spreadsheets and SPSS analysis.  Study data will be kept in perpetuity. It is vital to keep study data in perpetuity because assessment of this information is an ongoing process. Keeping study data will allow for the continuing comparison of work and working conditions in LTC facilities in different Canadian and international jurisdictions over time.

Questions About the Research?  If you have questions about the research in general or about your role in the study, please feel free to contact Dr. Tamara Daly either by telephone at 416-736-2100 x 30522 by e-mail (dalyt@yorku.ca).  This research has received ethics review and approval by the Human Participants Review Sub-Committee, York University’s Ethics Review Board and conforms to the standards of the Canadian Tri-Council Research Ethics guidelines.  If you have any questions about this process, or about your rights as a participant in the study, please contact the Sr. Manager & Policy Advisor for the Office of Research Ethics, 5th Floor, Kaneff Tower, York University (telephone 416-736-5914 or e-mail ore@yorku.ca).

I consent to participate in “What’s past is prologue: comparing long-term care workers and working conditions between Canada and the Nordic countries ten years later” conducted by Dr. Tamara Daly and her research team. I have understood the nature of this project and wish to participate.  I am not waiving any of my legal rights by agreeing to the content of this form.  My agreement below indicates my consent.

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